3-TIME MISSOURI SPORTSCASTER OF YEAR GETS 5TH-PLACE IN VIRTUAL SUMMER ULTRAMARATHON NEXT: 36-HOUR RUN FOR RETT SYNDROME AWARENESS

On October 24-25, Murry will use 36 hours in an attempt to amass 100 miles in his annual Rett Gets Rocked solo ultramarathon. The 2025 version will be at The Vineyards in St. Charles.

Proceeds will be split between the Rett Spectrum Clinic, in the WashU School of Medicine at St. Louis Children’s Hospital; and the International Rett Syndrome Foundation (IRSF). Rett Gets Rocked has raised over $31,000.

Rett syndrome is a rare neurological disorder caused by a gene mutation in the brain. In sinister fashion, Rett does not present itself until a child is learning how to walk and talk; typically between six to 18 months of age. Rett takes away these abilities and forces a child into a life without purposeful movement and communication. To make matters worse, Rett also causes a spectrum of life-threatening conditions: severe scoliosis, frequent seizures, eating and drinking difficulties that lead to tube-feeding, intense neurological pain, and compromised immune systems.

However, researchers have made great progress in the past two years. In 2023, the Food and Drug Administration (FDA) approved Trofinitide as the first drug that specifically targets and alleviates some of the effects of Rett syndrome. In 2025, the clinical trials of Taysha Gene Therapies and Neurogene, Inc. have helped patients regain:

● Walking short distances with support

● Speaking in phrases, or waving and tapping with their hands to communicate

● Improving hand function to grasp objects and feed themselves

Murry has covered over 1,100 WashU broadcasts. He will gladly cover 100 miles for a cure of Rett syndrome.

Jay Murry, Event Director: jmsproductions3@gmail.com